RLS Advocacy: Make Your Voice Count
We invite you to contact your legislators, share your experience with RLS and how it affects your everyday life, and let them know how they can support the RLS community. Click here to view all of our Advocate Training Resources.
RLS ADVOCACY AGENDA
Education and Awareness: Poor provider education on RLS routinely leads to misdiagnosis and under-treatment for RLS patients.
Medical Research: Research remains critical to finding a cure and better treatments for individuals suffering from this debilitating disease.
Access to Treatments: Efforts to combat the opioid epidemic have resulted in access challenges for RLS patients prescribed opioids appropriately; there must be a safe harbor in any policy or legislationfor RLS patients who rely on low-total daily doses of opioids to manage their RLS.
HOW TO GET INVOLVED
The Foundation partners with the Health and Medicine Counsel (HMC), a government relations organization that works with nonprofit organizations and companies in the healthcare industry, to guide and focus our advocacy efforts on behalf of the RLS community.
Ready to take action now? Here are some ways you can help:
For more information contact Philip Goglas, our Health and Medicine Counsel partner, with questions at Goglas@hmcw.org.
LEARN MORE
Read our legislative and policy priorities.
Read our statement of principles.
Read about our most recent advocacy efforts, including meetings with legislators and federal agencies:
2020 Federal Spending Package Supports RLS Research
What We’ve Achieved in 2019
We’re Making Progress: Let’s Keep Going
Opioids: Are RLS Patients Getting Caught in the Crossfire?