Advocacy

We need your VOICE AND YOUR SUPPORT for rls

Advocacy Webinar

How to Participate in RLS Advocacy 

  1. Watch the "How You Can Raise Awareness" webinar
  2. Review this prep packet for instructions, email templates and call scripts
  3. Call or email your Representative
  4. Let us know who you contacted in this short survey

Join our advocacy efforts to increase awareness among policy makers about the serious nature of RLS and gain their support on key issues that affect RLS patients and their families.

RLS ADVOCACY AGENDA

Education and Awareness: Poor provider education on RLS routinely leads to misdiagnosis and under-treatment for RLS patients.
Medical Research: Research remains critical to finding a cure and better treatments for individuals suffering from this debilitating disease.
Access to Treatments: Efforts to combat the opioid epidemic have resulted in access challenges for RLS patients prescribed opioids appropriately; there must be a safe harbor in any policy or legislationfor RLS patients who rely on low-total daily doses of opioids to manage their RLS.

Read our legislative and policy priorities.
Read our statement of principles.

HOW TO GET INVOLVED

The Foundation partners with the Health and Medicine Counsel (HMC), a government relations organization that works with nonprofit organizations and companies in the healthcare industry, to guide and focus our advocacy efforts on behalf of the RLS community.

Ready to take action now? Here are some ways you can help:

For more information watch our recent advocacy webinar featuring Peter Herzog at HMCW or contact Philip Goglas with questions at Goglas@hmcw.org.

LEARN MORE

Read about our most recent advocacy efforts, including meetings with legislators and federal agencies:
2020 Federal Spending Package Supports RLS Research
What We’ve Achieved in 2019
We’re Making Progress: Let’s Keep Going
Opioids: Are RLS Patients Getting Caught in the Crossfire?