Advocacy

We need your VOICE AND YOUR SUPPORT for rls!

Advocacy with Sen Warren

Join our advocacy efforts to increase awareness among policy makers about the serious nature of RLS and gain their support on key issues that affect RLS patients and their families.

ADVOCACY

RLS ADVOCACY AGENDA

Education and Awareness: Poor provider education on RLS routinely leads to misdiagnosis and under-treatment for RLS patients.
Medical Research: Research remains critical to finding a cure and better treatments for individuals suffering from this debilitating disease.
Access to Treatments: Efforts to combat the opioid epidemic have resulted in access challenges for RLS patients prescribed opioids appropriately; there must be a safe harbor in any policy or legislationfor RLS patients who rely on low-total daily doses of opioids to manage their RLS.

Read our legislative and policy priorities.
Read our statement of principles.

HOW TO GET INVOLVED

The Foundation partners with the Health and Medicine Counsel of Washington (HMCW), a government relations organization that works with nonprofit organizations and companies in the healthcare industry, to guide and focus our advocacy efforts on behalf of the RLS community.

Ready to take action now? Here are some ways you can help:

  • Your financial support keeps us in Washington
  • Submit your opioid experience for use in future letters to legislators
  • Write a personal letter to your members of Congress
  • Schedule a visit to meet with your legislator
  • Join us for Hill Day, it's your chance to participate in briefings and meetings with legislators
  • Follow and Share us on Social Media for up-to-date advocacy activities
  • Join the Foundation as a member to amplify our voice

For more information watch our recent advocacy webinar featuring Peter Herzog at HMCW or contact Peter with questions at herzog@hmcw.org.

LEARN MORE

Read about our most recent advocacy efforts, including meetings with legislators and federal agencies:
What We’ve Achieved in 2019
We’re Making Progress: Let’s Keep Going
Opioids: Are RLS Patients Getting Caught in the Crossfire?