Board

RLS Foundation Board of Directors

The Restless Legs Syndrome (RLS) Foundation Board of Directors is responsible for setting organizational goals and priorities, monitoring fiscal status and planning for the Foundation’s future.

Meet the Board of Directors

LewPhelps - 115x115

Lewis Phelps, Chair

Pasadena, CA

Phelps is a strategic public relations consultant with Sitrick And Company, a Los Angeles-based firm that specializes in handling crisis situations. He has worked in behalf of an international clientele of corporate clients in the transportation, energy, finance, manufacturing, and service industries, and an array of non-profit organizations. Previously, he was head of the public relations function for the nation’s second largest electric utility and for two major U.S. rail transportation companies. Early in his career he was a staff reporter for the Wall Street Journal for 10 years. He served in the U.S. Navy in Vietnam.

Phelps has extensive non-profit board experience in addition to a prior six-year term on the RLS Foundation board. He has chaired United Way campaigns in two cities, co-founded an anti-litter organization in Roanoke, Virginia, was on the board and executive committee of the California Science Center for 15 years, and has served as chair of the board of Pasadena Heritage, one of the nation’s leading local historic preservation organizations.

Ron Barrett

Ronald W. Barrett, PhD

Saratoga, CA

Barrett is a scientist entrepreneur with more than 30 years experience in the biopharmaceutical industry. He is the former CEO and a Director of XenoPort, Inc, a neurology-focused company he co-founded in 1999, which was acquired by Arbor Pharmaceutical in 2016. Under Barrett’s guidance, XenoPort advanced five in-house discovered compounds into human trials including mid- to late-stage clinical trials for the treatment of restless legs syndrome (RLS), post-herpetic neuralgia, painful diabetic neuropathy, migraine prophylaxis, alcohol use disorder, spasticity associated with multiple sclerosis, and Parkinson’s Disease. Barrett led the company’s efforts that resulted in the FDA approval of Horizant (gabapentin enacarbil), the first and only non-dopaminergic drug approved for moderate to severe RLS.

Barrett has co-authored more than 50 manuscripts from peer-reviewed journals, and is an inventor of more than 50 issued patents in the U.S. Prior to founding XenoPort, he was Senior Vice President of Research at Affymax Research Institute, where he pioneered the development and use of new drug discovery technology – work that led to 2 FDA-approved medicines. Barrett began his professional career in the neuroscience drug discovery group at Abbott Laboratories. Barrett is currently Executive Chairman of Medikine Inc, and a Director of Concert Pharmaceuticals, Inc. (Nasdaq:CNCE). He previously served as a Director of the Youth Science Institute, a non-profit focused on K-8 science education. Barrett received a BS degree in biology from Bucknell University and a Ph.D degree in pharmacology from Rutgers University.

Linda Secretan

Linda R. Secretan, Secretary

Eagle, ID

Secretan is an ICF certified life coach, her practice reaching across the U.S. to South America, Australia, Bulgaria, and even Thailand. Her desire to work with adults to discover, refine and realize their goals and make lasting changes – whether in personal flourishing, wellness, or vocation – grew from an academic career spanning a quarter century. Preceded by a graduate degree in Renaissance literature with later specialization in literacy pedagogy and adult education, three years of rigorous coach-specific training and internship led to International Coach Federation credentialing and her subsequent career. She particularly appreciates being able to do pro bono coaching for two groups, Women for Change, accessible to women of limited means across the world, and Stand Beside Them, an organization that provides coaching services to returning service members and their families. Her approach reflects her diverse background and theoretical grounding in evidence-based in Positive Psychology.

Secretan serves on the board of the Professional Coaching Association of Idaho and sings with the Boise Hospice Singers. In the past, she has volunteered for Le Leche League International as a human relations trainer, and served as President and Conference Chair for the National Association for the Education of Young Children in Antelope Valley, California.

Secretan is a long-standing member of the RLS Foundation. She currently leads the Idaho RLS Support Group, and has been on the Foundation’s Board of Directors since 2014. Additionally, Secretan represents the Foundation and RLS community through her service on the Sleep Disorders Research Advisory Board of the National Institutes of Health.

Bob Waterman

Robert (Bob) Waterman, Jr., Chair Emeritus

Hillsborough CA

Waterman’s first encounter with the RLS Foundation was in the early 90s when he was seeking better treatment for his own, severe case of RLS.  At that time, his case of the disease had been correctly diagnosed but the treatment proscribed was, for him, awful.  The then-small, and Raleigh, North Carolina-based, RLS Foundation steered him to the right doctors and toward better treatments. Within a year of that first encounter, Waterman joined the RLS Foundation board, founded the Foundation’s Research Grant Program and several years later was elected Chairman.

 

Outside the Foundation, Bob has pursued an active career as consultant, author, and director of for-profit and non-profit, organizations.  In 1964, only a few years outside of graduate business school, Bob went to work with McKinsey, thinking this will be a good experience for a couple of years.  As it turned out, he loved the work and stayed 21 years, ending his career there as a director (senior partner) with extensive experience in Australia, Japan and the US.

 

Toward the end of his McKinsey career, he co-authored In Search of Excellence, the most successful business book of all time.  At about the same time he helped start the AES Corporation, now one of the world’s largest independent energy producers.  Other corporate boards included McKesson, Boise Cascade, ASK Computer, and Mindsteps, Inc.  His non-profit boards included the San Francisco Symphony, Scleroderma Research Foundation, U.S. Ski Team, Colorado School of Mines, and the President’s Circle of the National Academies of Science.

 

Waterman is married, has two children, four grandchildren and is a very active painter in oils and aquarelle.

Jacci Bainbridge

Jacquelyn (Jacci) Bainbridge, PharmD

Englewood, CO

Bainbridge serves as a clinical pharmacy specialist at the Anschultz Outpatient Pavilion's Neurology Clinic, an extension of the Neurology Residency Teaching Program at the University of Colorado Denver. She is also a professor in the Department of Neurology at the university's School of Medicine, and teaches at the Skaggs School of Pharmacy and Pharmaceutical Sciences, where she was awarded Professor of the Year for three years in a row (2010-2012).

Bainbridge manages patients with neurologic disease states such as epilepsy, Parkinson disease, multiple sclerosis, migraine and restless legs syndrome. She is currently involved in research projects funded by the CDPHE using marijuana. In her recent past she has had projects funded by the NIH, spanning subjects such as epilepsy, multiple sclerosis and neuroprotection trials in Parkinson disease.

Martin

Joseph Martin, MD, PhD

Boston, MA

Martin is an Edward R. and Anne G. Lefler Professor of Neurobiology, and served as Dean of the Harvard Faculty of Medicine from 1997-2007. He is a member of the American Association of Physicians, a fellow of the American Academy of Arts and Sciences, and serves as a member and past president of the American Neurological Association.

Martin's work has led to significant strides in the medical field. His research focused on neurological and neurodegenerative disease, specifically the hypothalamic regulation of pituitary hormone secretions and the application of neurochemical and molecular genetics.

Martin chaired the Institute of Medicine's Committee that led to the development of the Human Brain mapping initiative. He also established the NIH-sponsored Huntington Disease Center, played a major role in founding the Massachusetts Alzheimer's Disease Research Center, and formed both the W.M. Keck Foundation Center for Integrative Neurosciences and the Gladstone Institute for Virology and Immunology. He went on to help form the Dana-Farber/Harvard Cancer Center, the Harvard Center for Neurodegeneration and Repair, and dedicated the Harvard Medical School's Research Building.

Martin has authored or co-authored more than 300 scientific articles and reviews, and is a former editor of Harrison's Principles of Internal Medicine, a widely used medical textbook. He has received numerous national and international awards throughout his career.

McDevitt

John T. McDevitt, PhD

New York, NY

Starla Phelps 115x115

Starla Phelps

Alexandria, VA

Michael Zigmond

Michael J. Zigmond, PhD

Pittsburgh, PA

Zigmond is a professor of neurology at the University of Pittsburgh. His research focuses on the study of neuronal cell death, survival and adaptation in neurological and psychiatric disorders.

Currently, Zigmond's research projects concern:

  • What underlies the loss of dopaminergic function in Parkinson's disease and aging, and how do trophic factors, exercise, and environmental enrichment act to decrease the vulnerability of these neurons?
  • What is the relation between dopamine neuron loss and the functional deficits that occur in normal aging?
  • How does isolation, whether due to long-term care, solitary confinement, or persistent feelings of loneliness, act to impair brain function and how can the damage be reversed.

Zigmond's research hopes to unearth insights that could provide new treatments for a variety of brain disorders.

RLS Foundation Scientific and Medical Advisory Board

The Foundation’s Scientific and Medical Advisory Board is responsible for monitoring medical and scientific/research issues, reviewing content of all Foundation publications, reviewing research grant applications,and advising the Board of Directors on issues of medical or scientific interest and importance.

 

Meet the Board

Early

Christopher J. Earley, MB, BCh, PhD, FRCPI, Chair

Johns Hopkins Bayview Medical Center; Baltimore, MD

Earley is a Professor of Neurology at Johns Hopkins School of Medicine, where he also co-director of the Johns Hopkins Center for Restless Legs, a certified RLS Quality Care Center. Earley is board certified in internal medicine, neurology and sleep medicine. Earley's research interests include RLS and sleep medicine, specifically the pathophysiology of RLS and revealing the value of various treatments. He is chair of the RLS Foundation’s combined Scientific and Medical Advisory Board (SMAB) and an active member of the Foundation's Research Grant Committee and the Revised Treatment Consensus Committee.

Becker

Philip Becker, MD

Dallas, TX

Becker is the founding partner and retired president of Sleep Medicine Associates of Texas, P.A., and served as medical director for the Sleep Medicine Institute at Texas Health Presbyterian Hospital of Dallas for nearly 25 years. Becker served as a Clinic Professor in the Department of Psychiatry at UT Southwestern Medical Center at Dallas until his retirement in 2019. Becker is an active member of the RLS Foundation's Opiates Committee and Quality Care Certification Committee.

Berkowski

J. Andrew Berkowski, MD

ReLACS Health, Ann Arbor, MI

Before receiving Board Certification in Sleep Medicine and Neurology, Berkowski earned his bachelor's degree in religious studies at Stanford University. Next, he returned to his home state of Michigan to study medicine, graduating from Wayne State University School of Medicine. He completed a transitional year internship at Henry Ford Hospital and neurology residency training at the Detroit Medical Center/Wayne State University. Berkowski completed his fellowship training in sleep medicine at the Stanford University Medical Center. Berkowski is a sleep specialist at ReLACS Health, a direct specialty care clinic specializing in telemedicine care of RLS and complex sleep disorders, currently serving patients in Michigan, Ohio and Florida. Berkowski serves on the Foundation's Brain Bank Committee.

Buchfuhrer

Mark J. Buchfuhrer, MD, FRCP(C), FCCP

Stanford Health Care, Stanford, CA

Buchfuhrer is a pulmonologist in Downey, California and is affiliated with multiple hospitals in the area, including PIH Health Hospital-Downey and Stanford Health Care-Stanford Hospital. He received his medical degree from University of Ottawa Faculty of Medicine and has been in practice for more than 20 years. Buchfuhrer serves on the Foundation's Medical Bulletin Committee, the Opiates Committee and the Revised Treatment Consensus Committee.

Clemens

Stefan Clemens, PhD, HdR

East Carolina University, Greenville, NC

Clemens is an Associate Professor in the Department of Physiology at the Brody School of Medicine at East Carolina University. His research focuses on investigating the neural networks in the spinal cord, especially their role in neurological disorders, like RLS. He studies the role of dopamine in the spinal cord, and how the interactions between its different receptor subtypes may play a role in augmentation. At the Foundation, Clemens chairs both the Brain Bank Committee and the Research Grant Committee.

Connor

James R. Connor, PhD, MS

Hershey Medical Center, Pennsylvania State University College of Medicine; Hershey, PA

Connor is a distinguished professor of neurosurgery, neural and behavioral sciences and pediatrics at The Pennsylvania College of Medicine. He also serves as the vice chair of neurosurgery research at the university, as well as the director for the Center for Aging and Neurodegenerative Diseases. His primary areas of research focus on understanding the cellular and molecular mechanisms by which cells regulate their iron status. Connor is an active member of the Research Grant Committee.

Ferre

Sergi Ferré, MD, PhD

Integrative Neurobiology Section National Institute on Drug Abuse
 IRP, NIH, DHHS; Baltimore, MD

Ferré is chief of the Integrative Neurobiology Section at the National Institute on Drug Abuse, IRP, NIH. He is an RLS Foundation research grant recipient where he researched cortico-striatal transmission in iron-deficient rats as a model for the screening of drugs potentially useful in the treatment of RLS. Ferré's research interests focus on the role of neurotransmitter receptor heteromers as targets for drug development in neuropsychiatric disorders, including substance use disorders. At the Foundation, he serves as a member of the Research Grant Committee.

Hensley

Jennifer G. Hensley, EdD, MSN, RN, CNM, WHNP-BC, LCCE

Baylor University, Louise Herrington School of Nursing; Waco, TX

Hensley is a certified nurse-midwife and women's health nurse practitioner. She built her clinical scholarship on restless legs syndrome during pregnancy and sleep disorders in women across the lifespan. Hensley is an active member of the RLS Foundation's Quality Care Certification and Medical Bulletin Committees.

Jones

Byron C. Jones, PhD

University of Tennessee Health Science Center; Memphis, TN

Jones is a professor of genetics, genomics, and informatics at the University of Tennessee Health Science Center, where he also serves as a member of the university's Neuroscience Institute. At Pennsylvania State University, Jones is a Professor Emeritus in behavioral health. His research interests include:

  • Response to chronic and acute stress in adaptation and alcohol consumption
  • Toxiogenetics of pesticides and neurotoxins
  • Genetics of metal regulation in the brain (copper, iron and zinc)

At the RLS Foundation, Jones is an active member of the Research Grant Committee.

Karroum

Elias G. Karroum, MD, PhD

The University of Virginia Primary Care Center, Charlottesville, VA

Karroum is board-certified in Neurology and is an Assistant Professor at The University of Virginia Department of Neurology. Karroum’s clinical interests include sleep disorders in general, movement-related sleep disorders such as restless leg syndrome, and sleep disorders in patients with neurological diseases. Karroum is fluent in Arabic and French in addition to English and serves on the Research Grant Committee.

Koo

Brian Koo, MD

Yale Center for Sleep Medicine; New Haven, CT

Koo is the director for the Yale Center for Restless Legs Syndrome, an RLS Foundation certified RLS Quality Care Center, as well as the medical director of Sleep Laboratory at the Veterans Affairs Connecticut Healthcare System. Koo is an associate professor of neurology at Yale University, and has been an active member of task forces and section committees related to the sleep-related movement disorders in the American Academy of Sleep Medicine. Koo is board certified in both neurology and sleep medicine, and much of his research lies in those categories. His research on RLS and PLMS has included animal modeling, epidemiology, proteomics and genetic analysis.

Mancini

Mauro Manconi, MD, PhD

Sleep and Epilepsy Center; Civic Hospital Neurocenter of Southern Switzerland

Manconi is director of the Sleep Center, Neurocenter of Southern Switzerland, a certified RLS Foundation Quality Care Center. He also teaches at the Master School of Medicine at Bern University, the Institute of Communication and Health at the Italian Swiss University of Lugano (USI), as well as at the Professional University School of Italian Switzerland (SUPSI). Manconi's research focuses on sleep disorders, specifically sleep-related movement disorders like RLS and PLMS, and he currently serves on the scientific board of the European Restless Legs Syndrome Study Group (EURLSSG). At the RLS Foundation, Manconi is an active member of the Medical Bulletin, Revised Treatment Consensus and Quality Care Center Certification Committees.

Ondo

William Ondo, MD

Houston Methodist Neurological Institute; Houston, TX

Ondo serves as director of the Movement Disorder Clinic at the Houston Methodist Neurological Institute, a certified RLS Quality Care Center. Throughout his career, Ondo has written more than 250 articles and book chapters. A movement disorder specialist, he is board certified in adult neurology and sleep medicine. Ondo's research specializes in Parkinson's disease, essential tremors, the use of botulinum toxins in treating movement disorders, and restless legs syndrome. At the RLS Foundation, Ondo is an active member of the Opiates Committee.

kathy Richards

Kathy Richards, PhD, RN, FAAN

University of Texas at Austin, Austin, TX

Richards is a research professor at The University of Texas at Austin, School of Nursing. As a UT Austin PhD graduate, Kathy has conducted sleep research in Alzheimer's disease for 20 years, and received over $25 million in NIH funding to support her research endeavors.

Her newest project is the NightRest project and the Behavioral Indicators Test for Restless Legs Syndrome in older adults. In partnership with Christine Kovach, PhD, RN, FAAN, a research professor in aging at the Jewish Home and Care Center at The University of Wisconsin-Milwaukee, Richards received a $3.9 million five-year grant from the National Institute on Aging to improve the treatment of nighttime agitation in those with Alzheimer's disease. They hypothesize that RLS may be a cause for nighttime agitation and sleep disturbance in these individuals. This study marks the very first time that a new diagnostic tool will be used in research on nighttime agitation. Richards serves on the Foundation's Research Grant committee.

Sharon

Denise Sharon, MD, PhD, FAASM

Pomona Valley Medical Center, Claremont, CA

Sharon works as an independent consultant out of the Sleep Disorders Adult and Children Center of the Pomona Valley Medical Center in Claremont, CA.

Throughout her education, training and work, Sharon has amassed research experience including, but not limited to, work as a Research Associate/Quantitative Electroencephalographer in the Laboratory of Psychoelectrophysiology, Department of Psychiatry and Health Behavior through MCG. Her research has been published in numerous journals, as well as industry supported pieces on Restless Legs Syndrome for Pfizer, Xenoport, Luitpold, and more.

Sharon has been involved in multiple committees for the American Association of Sleep Medicine (AASM), such as the Center Accreditation, Fellowship Accreditation, Nosology Committees and Movement Disorders Section (vice-chair). She is a member of the International Restless Legs Syndrome Study group and the American Academy of Sleep Medicine Task Force on the update of the treatment of RLS and PLMD; just another way in which she is helping those with RLS. Sharon serves on the Foundation's Pediatrics and Quality Care Center Certification committees.

Silber

Michael H. Silber, MBChB

Mayo Clinic, Rochester, MN

Silber is a board certified neurologist and sleep specialist and serves as Director of the Mayo Clinic RLS Foundation Certified Quality Care Center and Dean, Mayo Clinic School of Health Sciences.

At the RLS Foundation, Silber is current chair of the Revised Treatment Consensus committee and serves on the Opiates committee. With a particular focus in neurology, Silber's areas of research include:

  • Relationship of REM sleep behavior disorder to neurodegenerative diseases
  • Drug management and predisposing factors related to restless legs syndrome
  • Epidemiology and pathogenesis of narcolepsy with special reference to the hypocretin system
Uhl

George Uhl, MD, PhD

New Mexico VA Healthcare System; Albuquerque, NM

Board certified in neurology -- with a PhD in neuropharmacology and with substantial contributions to clinical trials, human genetics, mouse genetics, neuropharmacology and in vitro studies -- Uhl now manages a research program based at the New Mexico VA Healthcare System and his own laboratory and translational/clinical research. He has long studied the mu opiate receptor, at which several RLS drugs work, and the RLS gene PTPRD, for which he has discovered novel ligands. Uhl also has experience in addiction and Parkinson’s disease. Uhl's major research interests include:

  • Translational studies of complex genetics of RLS and other brain disorders
  • Mechanisms of RLS, addictions and Parkinson’s disease
  • Discovery of novel therapeutic approaches to RLS, addictions and Parkinsons disease

At the Foundation, Uhl is a member of the Research Grant and Brain Bank committees.

Walters

Arthur S. Walters, MD

Vanderbilt University School of Medicine; Nashville, TN

Walters works at the Vanderbilt University School of Medicine, where he is Professor of Neurology in the Seep Division. He is also director of the RLS Foundation Quality Care Center at Vanderbilt. Throughout his career Walters has focused his research on sleep-related movement disorders. From 1992-1998, he helped found and served as the first chair of the Foundation's Medical Advisory Board, and continues to serve on the Foundation's combined Scientific and Medical Advisory Board. Additionally, as the founder and first chair of the International Restless Legs Syndrome Study Group, Walters helped establish the universal clinical criteria for the diagnosis of RLS. Walters has played an integral role in the history of the Foundation. Walters was a key player in establishing and validating the first scale to be used for the measurement of RLS severity, a scale that is now the most widely used for measuring RLS severity in both academic and industry sponsored studies. Walters is currently serving as chair of the Foundation's Quality Care Certification committee, chair of the Pediatrics committee and is also a member of the Opiates committee.

Winkelman

John W. Winkelman, MD, PhD

Harvard Medical School; Boston, MA

Winkelman is board certified in both Psychiatry and Sleep Medicine and treats sleep disorders patients at Massachusetts General Hospital. He specializes in RLS, insomnia, sleep apnea, sleep-related eating disorders and parasomnias. His research primarily focuses on epidemiology, physiology, cardiovascular consequences and the treatment of RLS as well as the neurobiology and treatment of insomnia.

Winkelman is Chair of the International Restless Legs Syndrome Study Group and is consultant to DSM-5-TR RLS section and the AASM Sleep-Related Movement Disorders section. He served as chair of the American Academy of Neurology Practice Parameter Committee for the treatment of RLS. At the RLS Foundation, Winkelman is the current chair of the Opiates committee and serves on the Revised Treatment Consensus committee.